Table 4 Caregiver reflections on the instrument

The instrument proved helpful in enabling caregivers to identify the specific aspects of self-care support where they may be inadequate in providing for the patients, with a particular focus on self-care monitoring.

Some items in the questionnaire were difficult to understand, such as item 2, which asked about “moderate physical activity.” Participants wished for clearer definitions or examples for such terms.

Provide clearer definitions or examples for terms and concepts in the questionnaire to enhance understanding.

Filling out this instrument has given me time to think about my contribution to patients and relieved me of anxiety and guilt.

The questionnaire was perceived as lengthy, and some caregivers lacked the patience to answer all the questions at once.

When distributing the questionnaire, try to avoid the busy time of the caregiver, and distribute the questionnaire when the caregiver is free and energetic.

This instrument is for caregivers and it made me see my worth to stroke survivors.

Participants found it challenging to judge the frequency of certain behaviors, as it felt too subjective and uncertain if they were filling it out correctly.

Improve the objectivity of frequency assessment to make it easier for caregivers to respond accurately.