Table 3 Overview included studies

Blackmore, 2001, United Kingdom. (S23)

Explore learning disability nurses´ perceptions about their role in advocating for clients who have ID + physical, sensory and communication disabilities

N = 8 RNLDs Gender not known Community Trust, LD Directorate

Generic qualitative design

Semi-structured interviews Constant comparison

Translatable 2nd order concepts n = 2 Non-translatable 2nd order concepts n = 4

[F^a] Work against negative attitudes and alienation [M] Entail advocacy and safe guarding

Fatally flawed paper

Boarder, 2002, United Kingdom. (S28)

Obtain an overview of Community Learning Disability Nurses´ perceptions of their work

N = 20 RNLDs Gender not known NHS Trusts in Wales

Generic qualitative design

Semi-structured interviews Content analysis

Translatable 2nd order concepts n = 3 Non-translatable 2nd order concepts n = 1

[F^a] Work against negative attitudes and alienation [G^a] Raise the bar in care for this patient group [N^a] Understands the complexity of this patient group

Fatally flawed paper

Campbell, 2011, United Kingdom. (S16)

Describe participants’ emotional response to violence and to explore what support they require in dealing with constant exposure to workplace violence.

N = 6 RNs Gender not known Unit for adults with ID and challenging behaviour

Generic qualitative design

Semi-structured interviews, Thematic analysis

Translatable 2nd order concepts n = 2 Non-translatable 2nd order concepts = 0

[J^a] Take unpredictable situations into account

Satisfactory paper

Donovan, 2012, United Kingdom. (S1)

Describe the experiences of Learning Disability Nurses when they are with clients who may be in pain but who cannot communicate their feelings verbally.

N = 8 RNIDs Gender not known Care homes [NHS Trust]

Phenomenology

Unstructured interviews

Translatable 2nd order concepts n = 2 Non-translatable 2nd order concepts n = 1

A^a] Based on long-term relationships [B] Rest its foundation on trust [C^a] Go beyond verbal communication alone

Fatally flawed paper

Doody et al., 2012, Northern Ireland. (S2)

Explore the experiences of RNIDs caring for older people with ID.

N = 7 RNIDs ♀ 5 + ♂ 2 Voluntary service providing community care in residential settings

Phenomenology

Semi-structured interviews Thematic analysis

Translatable 2nd order concepts n = 3 Non-translatable 2nd order concepts = 0

[A^a] Based on long-term relationships [D] Be forward planning [E] Include relevant others to offer quality care [F^a] Work against negative attitudes and alienation [G^a] Raise the bar in care for this patient group [H] Acknowledge the person behind the label of disability [I] Based on evidence-based practice

Fatally flawed paper

Fitzgerald et al., 2013, Ireland. (S18)

Explore nurses´ perceptions of their role in the area of ID care

N = 7 RNs ♀ 7 Community residential service

Generic qualitative design

Semi-structured interviews Latent content analysis

Translatable 2nd order concepts n = 2 Non-translatable 2nd order concepts n = 2

[A^a] Based on long-term relationships [C^a] Go beyond verbal communication alone [L] Inter-professional [M] Entail advocacy and safe guarding

Fatally flawed paper

Focht-New, 2012, USA. (S29)

Describe RNs experiences of teaching for people with IDD

N = 23 RNs Gender not known Learning disability community trust

Grounded theory

Interviews, focus group interviews, non-participant observations Constant comparison

Translatable 2nd order concepts n = 1 Non-translatable 2nd order concepts n = 1

[B] Rest its foundation on trust [G^a] Raise the bar in care for this patient group [H] Acknowledge the person behind the label of disability

Fatally flawed paper

Hellzen et al., 2004, Sweden. (S5)

Illuminate the meaning of being a nurse for an extremely provoking patient with ID

N = 8 Enrolled nurses ♀ 5 + ♂ 3 Group Dwelling

Phenomenology

Narrative interviews Constant comparison

Translatable 2nd order concepts n = 2 Non-translatable 2nd order concepts n = 1

[J^a] Take unpredictable situations into account

Satisfactory paper

Lee & Kiemle, 2014, United Kingdom. (S7)

Gaining an in-depth understanding of the day-to-day experience of nurses working with people diagnosed with both PD and ID

N = 9 RNs ♀ 7 + ♂ 2 Medium-secure and low secure units

Interpretive phenomenology

Semi-structured interviews, Interpretative phenomenological analysis

Translatable 2nd order concepts n = 3 Non-translatable 2nd order concepts = 0

[A^a] Based on long-term relationships [F^a] Work against negative attitudes and alienation [H] Acknowledge the person behind the label of disability [J^a] Take unpredictable situations into account

Satisfactory paper

Li & Ng, 2008, United Kingdom. (S8)

Explore nurses´ experiences in caring for dying patients with profound learning disabilities

N = 5 RNs ♀ 3 + ♂ 2 Residential homes in one PCT in the South of England

Generic qualitative design

Open-ended semi-structured interviews Constant comparison

Translatable 2nd order concepts n = 2 Non-translatable 2nd order concepts = 0

[A^a] Based on long-term relationships [K] Knowledge and skills beyond the diagnosis (here IDD) [L] Inter-professional

Fatally flawed paper

Marsham,2011, United Kingdom. (S31)

Explore the experiences of RNIDs communicating with adults with ID who use

N = 8 RNLDs ♀ 8

Descriptive phenomenology

Semi-structured interviews Phenomenological analysis

Translatable 2nd order concepts n = 6 Non-translatable 2nd order concepts = 0

[C^a] Go beyond verbal communication alone [E] Include relevant others to offer quality care [G*] Raise the bar in care for this patient group [H] Acknowledge the person behind the label of disability [L] Inter-professional [N^a] Understand the complexity of this of patient group

Fatally flawed paper

Martin et al., 2012a, Ireland. (S10)

Explore the experiences of RNIDs communicating with adults with ID who use non-verbal communication

N = 8 RNLDs ♀ 8 Irish residential service for people with IDD

Phenomenology

Semi-structured interviews Phenomenological analysis

Translatable 2nd order concepts n = 1 Non-translatable 2nd order concepts = 0

[A^a] Based on long-term relationships [B] Rest its foundation on trust

Satisfactory paper

Martin et al., 2012b, Ireland. (S11)

Explore the experiences of RNIDs communicating with adults with ID who use non-verbal communication

N = 8 RNLDs ♀ 8 Irish residential service for people with IDD

Phenomenology

Semi-structured interviews Phenomenological analysis

Translatable 2nd order concepts n = 2 Non-translatable 2nd order concepts n = 1

[C^a] Go beyond verbal communication alone [L] Inter-professional

Fatally flawed Paper

Morton-Nance & Schafer, 2012, United Kingdom. (S12)

Explore the experiences of RNLD and district nurses caring for people with a ID at the end of their lives

N = 6, 3 RNs & 3 RNIDs ♀ 6 Two specialist health care settings

Descriptive phenomenology

Semi-structured interviews Thematic analysis

Translatable 2nd order concepts n = 5 Non-translatable 2nd order concepts = 0

[A^a] Based on long-term relationships [C^a] Go beyond verbal communication alone [D] Forward planning [E] Include relevant others to offer quality care [F^a] Work against negative attitudes and alienation [G^a] Raise the bar in care for this patient group [H] Needing acknowledge the person behind the label of disability [L] Inter-professional

Fatally flawed paper

Ndengeyingoma & Ruel, 2016, Canada. (S21)

Explore nurses´ representations of caring for people with ID, intervention strategies they current use, and to identify needs to ensure quality care

N = 18 RNs ♀ 14 + ♂ 4 2 general hospitals, 1 mental health hospital and 7 community care centres

Generic qualitative design

Semi-structured interviews Thematic analysis

Translatable 2nd order concepts n = 3 Non-translatable 2nd order concepts = 0

[C^a] Go beyond verbal communication alone [E] Include relevant others to offer quality care [G^a] Raise the bar in care for this patient group [K] Knowledge and skills beyond the diagnosis (here IDD) [L] Inter-professional [N^a] Understand the complexity of this patient group

Satisfactory paper

Slevin & Sines, 2005, United Kingdom. (S26)

Investigate the roles of community nurse for people with ID when caring for clients, and their careers, when the client is a person who indulges in challenging behaviours

N = 22 RNLDs Gender not known1 UK NHS trusts

Grounded theory

In-depth face-to-face interviews Constant comparison

Translatable 2nd order concepts n = 6 Non-translatable 2nd order concepts n = 3

[A^a] Based on long-term relationships [D] Be forward planning [E] Include relevant others to offer quality care [F^a] Work against negative attitudes and alienation [G*] Raise the bar in care for this patient group [I] Based on evidence-based practice [L] Inter-professional [N^a] Understand the complexity of this patient group

Satisfactory paper

Sowney & Barr, 2006, Northern Ireland. (S13)

Explore the experiences of nurses working in accident and emergency departments in the assessment and provision of care to adults with ID

N = 27 RNs Gender not known Hospital, accident and emergency departments

Generic qualitative design

Focus group interviews Thematic analysis

Translatable 2nd order concepts n = 1 Non-translatable 2nd order concepts n = 1

[E] Include relevant others to offer quality care [K] Knowledge and skills beyond the diagnosis (here IDD)

Key paper

Taua & Farrow, 2009, New Zealand. (S14)

Identify and describe current nursing practice within an inpatient ID service and to identify factors that influence current nursing practice within an inpatient ID service

N = 5 RNs Gender not known Inpatient ID service

Ethnography

Observations and semi-structured interviews Ethno semantic analysis

Translatable 2nd order concepts n = 1 Non-translatable 2nd order concepts = 2

[J^a] Take unpredictable situations into account

Key paper